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Kemarin sunday, March 14th ada wawa attend forum mengenai Thalasaemia. All about Thalasaemia~ Patients, Therapy, Adverse reactions, Its management n termasuklah fatwa mengenainya. Every thursday morning ada clinic khas for Thalasaemia patients. semasa berjumpa doktor, patients n parents ditanya akan hal keadaan pesakit atu. Kadang nampak dari warna kulit, kalau nampak pucat, selalunya turuntah 'Haemoglobin' (Hb) nya tu. Ani dikatahui dari result blood test PRE 'Full Blood Count' which is taken 3 days before appointment. ada yang memerlukan 'blood transfusion' as soon as possible kalau randah banar Hb nya n nampak pucat. Ada yang booking transfusion day awal awal lagi kadang via phone the day before. Booking days Thursday till Monday, 5 orang dalam sehari kadang ikut available katil jua. Mostly pesakit datang with other sibling kadang 3 of them jumpa same day, same time, see same doctor. Kasian jua kalau appointmentnya different day, balik balik parents membawa ke Hospital. Selain FBC, we have to monitor 'Ferritin level' jua every 3 months. kalau tinggi ferritin nya sampai >1,ooo atutah yang bahaya. Ani disebabkan Pesakit nda memakan ubat dengan secara teratur, which is kadang kadang 'Ter miss' tia apa. Banar pulang sakit yang menggunakan through machine pump, tapi ada jua makan ubat betalan. Mula mula doctor n nurses yang ajar cemana memasang, tapi lama kelamaan, parents n patients sudah terbiasa. kadang masalahnya syringe pump jua, tapi dapat dibawa kehospital tuk kan di komplen n repair. Blood transfusion given in wad 3. Wawa minat banar topic ani pasal ada tesangkut hal hal social dan hukum2. Apapun niat kitani untuk mengubati dan berubat. Bear in mind, penyakit ani bukan jenis penyakit yang dapat dicegah, kerana ia adalah penyakit keturunan yang didapati dari kedua ibu dan bapa. sebab atu penyakit ani kadang kadang sensitif isu.

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